5.13.2013

Brave


Sometimes in life we find
someone who inspires. 
Someone who fights 
through hardship with
grace and hope.


Someone who
takes what
she has been dealt, and
tries to help others
to understand, instead
of carrying self-pity or anger.


Our 9 year old is that person.
She has dealt with
since birth.
Violent vomiting
followed by days of life-altering vertigo.


She pushes through an 
episode every 80 days or so.
(We made it to 79 this time)

Then she picks up where
she left off....


...showing us all that
we need to embrace the
good times,
celebrate them.


She also deals
with her 
diagnosis of Celiac Disease
(unrelated to the CVS)
in such a mature manner.


Yesterday,
Mother's Day,
we went to watch a Mother's Day 5k
near our house.
This is C after 1 hour of sleep.
She is the one who encouraged us to go
to cheer on our friends.
Sit home and feel sorry? No way.
Rest? Not a chance!

Last night was another round.
Today she is
home from school resting, (as am I),
but it won't hold her back.
She has life to live.
She has people to inspire.
She is so brave.

42 comments:

  1. What a brave trooper! She is such a beautiful girl and a true inspiration. "Keep shining, my beautiful dear!" My eyes are filled with tears. Thank-you for sharing. I had never heard of CVS. I know a few people with celiac disease, that in itself is a trial. Yes, she is so brave as is Mommy; be strong! Hugs and prayers.

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  2. What a neat kid you have there! I hope it abates as she grows. Gorgeous children!

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    1. teresa, she is a neat kid! We are hoping it lessons as well! Thanks!

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  3. Oh, wow. You, go C! I love this post, btw. Brought tears to my eyes.

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    1. Dina, thanks sweetie! I may not comment often, but I always check out those cute Boden outfits!

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  4. Very strong girl indeed. Glad to hear that she is a brave one keeps going ahead in life and it doesn't let her down! Way to go. Hope you had a wonderful Mothers Day!

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    1. Thanks! She's a toughie! She teaches me daily!

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  5. What a horrible thing for her to have and how hard it must be for you. She is indeed, brave, and so are you, mama.

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  6. My dear, I have never heard of this syndrome....she indeed is a brave girl! Oh dearest, I am so sorry she has to deal with this. YOU are brave as well. Peace today to you all, Anita

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    1. It is such a confusing illness Anita, and still hard to gasp after many years of dealing with it! Thanks for your kind thoughts. My "French" post is ready to go....can't wait to read the others!

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  7. Not only is your daughter brave, she is strong and beautiful too! Young people can teach us all amazing things. I am sorry she has to deal with this, but I am thankful that she has been blessed with courage, grace, hope, and a strong loving mother ~ father and brother too, I'm sure! Take care!

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  8. You have certainly inspired me with C's story. Love those smiling eyes and the appreciation for life she has, making the most of the moments. She too is blessed to have such a supportive family by her side. Thanks for giving us a glimpse into the brave life of an amazing girl!
    Liz

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    1. C is so thrilled when I read her these sweet notes. She is amazed at the outpouring of love. Thanks.

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  9. She is a brave little girl! She reminds me of my niece who is also "C" & has horrible & life threatening food allergies along with very bad asthma and takes umpteen meds to breath every day, I don't know how these little girls do it, they certainly are my heroines! Hope you baby is feeling better soon!

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    1. Sounds like you have experienced this firsthand. They are heroines! Thanks for the sweet words.

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  10. Your beautiful daughter is a brave little girl and an inspiration for all of us!

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    1. Sharon, thanks for the visit and your kindness.

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  11. Our children do learn from us...so you must be very strong too! I am so sorry you all have to go through this, and repeatedly. It must be so exhausting for C. and for you. What a lovely girl, and so full of life and energy!Enjoy your time now that this episode has passed... We are all thinking of you! oxox

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    1. It is exhausting , but C NEVER complains. Thanks for kind words.

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  12. Growing up with a younger sister who was often ill I appreciate this post ND.
    And as a brother it was sometimes hard to realise that my parents didn't fuss around her and give in to her on occasions because they liked her better than us but because she was suffering.
    It taught her to be tough and to soldier on (as she did, and as your daughter is doing).
    Now my sister is older, married, and has children of her own, and thankfully only has the occasional relapse. I think that the illnesses of her youth molded her into the kind and loving mother she is today, and made us closer as siblings.
    A lovely post ND

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    1. Kirk, you have a true understanding of what the sibling must go through! C has a very understanding brother....but I'm sure it's not always easy. Your sister sounds like an amazing woman.

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  13. Can you imagine what kind of adult she will grow to be. If she has this much grace and bravery now, the skies are the limit. What a great girl!

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    1. She is going to make the best of whatever path life leads her on! Thanks for your kindness.

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  14. Your daughter is truly an inspiration. I admire the fact that she just goes with the flow. It seems like she must have learned it from mom and dad.

    Thanks for the sharing your/her story and making me appreciate my own life.

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    1. My pleasure....she does have that affect on people! I think I can be laid back....will try to be MORE laid back. Thanks!

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  15. What a brave little angel. I was just sitting here moaning about the awful weather, until I read this post and your daughter’s bravery really just put everything in to perspective for me. She is obviously destined for great things. I bet you are the proudest mom in the world! I hope she feels better soon. x

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    1. Meghan, what sweetness! I love the fact that C's story is inspiring so many! I am EXTREMELY proud! Thanks a bunch :)

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  16. What a great little role model for us all about grace and loveliness. I am so glad to have found your blog! - cottageatheart - Julie

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    1. I am glad you popped in Julie. Thanks for your kind words!

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  17. You truly are blessed with the most amazing resilient & grateful daughter - your post has inspired me to be a better person.

    Melissah

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  18. Touching. Very sweet post. I admire her strength and courage. I have always found children so strong and resilient. When living in Houston I volunteered at the Ronald Mc Donald House for 5 years and no matter how bad of a day I thought I was having, when I got there it all seemed so trivial. Puts things in perspective. Great post and what an awesome daughter you have. =0)

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    1. So true about youth! So fearless and brave! When did we develop fears and hang-ups? If only we could be as strong! Thanks!

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  19. I just know that your
    brave girl has had the
    best role model in living
    life with grace and courage--
    her mama. Praying that
    your sweet one will outgrow
    the syndrome and continue
    to do well managing the CD.

    She is darling and her spirit
    truly shines!!!

    Love & Hugs,
    xo Suzanne

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    1. Hi Suzanne. I also pray she will outgrow it! Thanks for happy thoughts!

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  20. She is beautiful and we can see how wonderful she is...
    My heart goes to you, as a mother of 2 special need boys I understand your feelings.
    I wish, I hope and I know that she will be happy her whole life, just because she has that thing inside her... The same little (BIG) something that I see on my children's eyes.

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    1. Elaine, how very thoughtful of you. As a teacher for many years, I imagine you advocate for your boys the same way we advocate for our children. C certainly has that sparkle in her eyes as well! Perhaps that is the sign we have been waiting for to know all will be ok....with you too. Come back soon...I wasn't able to link to a blog for you....

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Thanks for chatting!

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