5.02.2011

Finally...a Diagnosis...



Our 7 year old has been diagnosed with Celiac Disease. Her original bloodwork came back positive; then she had an endoscopy at Children's Hospital in Boston. The results came in today...confirming the initial diagnosis of Celiac. She also has gastritis...which explains the belly aches. We used to just say...."You must be hungry"...not realizing we were probably making it worse by encouraging food.

Those of you who have been reading my blog for a while know that C has Cyclic Vomiting since infancy. Now, our hope of all hopes is that the new gluten free diet will erase her bouts of Cyclic Vomiting.

We will also watch for C's growth to get back on track.

We will accept any Celiac advice or recipes out there!

She is tough, and a fighter...my little hero!

13 comments:

  1. It must be such a relief to have a diagnosis! At least you can make a plan now.

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  2. http://cannelle-vanille.blogspot.com/2008/01/about-cannelle-et-vanille.html
    Above is a link to a beautiful food blog featuring gluten free recipes. Good luck with your daughter.

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  3. I'm glad to hear your news! Your daughter and entire family are in my thoughts and prayers! :)

    P.S. Thank you for shipping my giveaway prize so quickly...I love everything! :)

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  4. Gluten free will make her so much more comfortable. Once you figure out how to handle the diet everything will be just fine.

    Now you know the issue and it can be addressed with the knowledge you have.

    I am relieved. Things will get better quickly.

    Cheers,
    Bobby

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  5. Ran onto your blog--so glad to hear you've found an answer to your daughter's issues. That must have been terrible, wondering all that time. I cannot more highly recommend a lovely person named Lissa and her beautiful blog where she and her two young daughters are all gluten free. She shares many wonderful recipes and she has a clean and organized life that I aspire to;) Good luck!
    http://adashofhumblepie.blogspot.com/

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  6. Oh WOW--just ran over to Lissa's blog only to find she is actually changing it over to all cooking/recipes style blog and you guessed it, ALL gluten-free! New blog name is:
    http://keepitsimplekeepitfresh.blogspot.com/
    but you should also check out her Humble Pie site;)

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  7. While I do not have suggestions or Gluten-Free recipes, I am encouraged that I do see GF options at many places. My Whole Foods store has a great variety of products targeted to those with gluten intolerance. I am so glad diagnosis was made early on , before much damage is done, it truly is a blessing in a way. Many positive thoughts and encouragement to stay strong to your beautiful daughter.

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  8. So happy you found an answer. I hope she feels much better on the new diet. Before meeting my husband I dated someone for 6 years with it. Though restrictive even I felt better eating gluten free all those years. Good luck to her.

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  9. Hi - visiting you thru JCAUNCMOM. There's an abundance of information out there, but to add to it...Summerilla of Sum Sunshine has celiac. I recall her talking about how to eat while traveling for work, so she's a good source. Also, Trader Joe's -- if you have one in your area -- will give you a comprehensive list of their gluten-freen products. It's possible Whole Foods might have a list as well.

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  10. Well wishes for C and glad you now have a path to help C feel better and adjust to a lifestyle that will work for her.
    xo Cathy

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  11. I'm new to your blog - so sorry to hear about C! Hope she starts feeling better ASAP and is able to get some relief.

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  12. I HIGHLY recommend this site:http://keepitsimplekeepitfresh.blogspot.com/

    Try and find the finely milled rice flour by "flying horse" at an Asian market. It can also be purchased at amazon.com I think. Her chocolate chip cookies are BETTER than the original. She will guide you in telling you staples for the pantry and everything. She has been a life saver! ANd saved me TONS of money with yucky tasting things. Good luck!

    J :)

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  13. Wow! Thanks to all of you for your support!

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Thanks for chatting!

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